My son Joshua, my king, was born with End Stage renal disease. It was discovered that his kidneys were damaged in utero, due to posterior urethral valves. When I was 8 months pregnant with him, I was told by doctors that he would not survive. They told me he would either be stillborn, or just not make it out of the delivery room. I was prepared for the absolute worst. My miracle baby though, he had other plans. Despite him not having full lung development, and kidneys that were failing, he fought. LJ had to undergo dialysis treatments at home until he was big enough to be added to the transplant waiting list, and waited over a year before he was blessed to receive his kidney transplant. It has been a long road, and it is far from over, but now I would like to invite you to continue the journey with us. Through the years, I have become stronger and more knowledgeable than I could have ever imagined. Three years ago now, I lost my fiancé, the love of my life, my son lost his father; No child should know that pain at such a young age. Through it all though, we have found strength in each other, and I know I could not have made it without my baby. There have been so many times when I wished for someone who knew my pain, someone who was going through what I was going through. It is not easy having a child with any disability, and sometimes, well, a lot of times, you feel alone, like there is no one who can understand. You will never know the struggle of raising a child with a disability, or serious health problem, unless you have lived it. If there are any single mothers, fathers, or just anyone who takes care of a child who needs that extra special love and care, I want to be here for you. We can be here for each other. I know how overwhelming things can become, and that's why I needed to do this for myself, and everyone out there who needs someone, like I did!!!
I love the faces he makes. |
My baby saying please. |
Such a little angel. I love his life!! |
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