Today LJ had to see Nephrology and GI. The good thing is that all of his labs looked great from a nephrology standpoint. They said he couldn't have been more perfect from their point of view.
Now GI on the other hand was something that I was more concerned about. With everything going on with my baby's poor tummy, who knew what to expect. They want to put him back on the medicine he was just on, the flagyl, for a month this time, but they want to try it along with a probiotic. The probiotic would go for a few months though. The thing about that though is that when he was on the flagyl, he had t get blood draws every few days, so that is not cool. According to the docs, there is also another option, which is vancomycin, but that is much more expensive, and they don't know if LJ can have it because of his transplant. Either way, any of this has to be approved by renal before it will actually happen. Another thing is, I have to pay out of pocket for probiotics, which are expensive, so they need to know if this is going to work because I have already tried some that didn't, and wasted my money. If all of this still doesn't work though, they are going to want my poor baby to have a colonoscopy done, and he is going to have to be admitted to the hospital for that one. Hopefully, we won't end up making it to that point. They did say that they would be willing to try imodium, which was my suggestion, because it worked for him in the past, if they can rule out the possibility of any infection. Of course, I already know that this all started when he was on the amoxicillin, but, I'm just his mother. So they took some more stool samples today, and some blood, and now more waiting. Waiting for results, and waiting for the official plan.
On the schedule tomorrow, another ultrasound of LJ's kidney, and an appointment with urology to discuss. Prayers going up!
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