Surprises

Today has been a day full of surprises, and not in a good way.  LJ and I were supposed to go home this afternoon, but that didn't happen.  We are still here at Boston Children's Hospital waiting for some answers, but there are a few different issues that have arisen since we got here.  Originally, we were coming to find out some answers to why LJ is having all of this diarrhea, but now things have gotten worse than what I thought.  During what was supposed to be a routine yearly work up, LJ had an ultrasound of his kidney and a VCUG (voiding cystourethrogram; a test to look at how well the bladder, kidneys and urethra are working.  It is administered by inserting a catheter into the child's bladder, which is obviously uncomfortable, and drove LJ crazy.)  After the VCUG, the doctors noticed that LJ had some reflux into his kidney that had not been there before.  Now, tomorrow, he has to undergo more painful and invasive testing called urodynamics.  This I am not exactly too sure about because I have yet to talk to the the urologists about the extent of the testing that he will be going through.  Some testing can be relatively simple, but others can be more extensive.  We just have to wait again until tomorrow to see what happens, and what the results are.  We still don't have anymore answers about the diarrhea, except that before we got here, I found out that LJ tested positive again for C- Diff.  This time though, they are going to try a different medication since the vancomycin didn't help before.  Other than that, the actual scope didn't reveal anything except that his colon and intestines look healthy,  They did biopsy some of the tissue to see if there was anything else that could be found under the microscope.  We are waiting to hear back about that also.  So, once again, not many answers, just waiting, until tomorrow.  Prayers continuing to go up, always trying to stay positive.