HOME Sweet Home

It feels so good to be back home.  We made it back Thursday afternoon, after spending what seemed like the longest 3 days ever in Boston.  There is nothing like being in my own bed  I swear.  The good thing is though, the trip ended up being very productive, and it wasn't nearly as bad as I had feared.

     On Wednesday morning, LJ had a repeat ultrasound of his kidney so that they could compare it to the one he had a few weeks ago.  After his ultrasound, we had an appointment with urology to discuss both of them.  The urologist was actually very happy with how LJ is doing, and thought his ultrasounds both looked fine.  The swelling in the kidney is not bad at all according to him, and it is normal for children who have transplants.  His kidney is doing great according to his lab work.  Also, LJ had a full bladder during the first ultrasound, which he explained, would make the swelling appear more pronounced, in anyone's kidney.  The ultrasound done in Boston had much less swelling, which was reassuring.   After hearing that, I felt a huge relief.  I was in a panic, dreading this trip for that very reason.  I was so terrified of what this could all mean.  It is so good to know that everything is OK.  The doctor also said that the hydronephrosis tends to improve in young children once they are potty trained, so that is hopeful too.  But, at least he is still good in the meantime.  Thank God.

LJ at the hotel on his way to the doctor.  Too cool to look at the camera

I got a smile!

     While we where waiting for LJ's urology appointment, we stopped to see Courtney, the transplant coordinator.   As luck would have it, there was a Dermatologist in the office with her, and she was able to take a look at these little bumps that just started popping up.  She told us it seemed to be follicolitis, and it could easily be treated with bacitracin cream; so that saved us a trip to the dermatologist at home.  Then, while we where there, we got back results from his stool studies, and we finally found out that he dos have C-Diff, which they are going to treat with a month long treatment of vancomycin.  This should actually put an end to this terrible, awful, stomach bug for my baby.  So all in all, it turned out to be a pretty good trip,  The doctors thinks LJ is doing great, we are going to treat his tummy, and we don't have to come back until October.  He is also back to labs only once a month.  Yaaay!