Tuesday, September 1, 2015

A very personal journal entry from June 7, 2011

I always thought of myself as a good person.  Everyone makes bad decisions from time to time, but aside from that, I've been ok.  Every since I was a young girl, I wanted to be a great mommy someday.  When me and Josh got together, it was all we talked about, becoming parents, getting married, all that good stuff.  Seven years into the relationship, just before he goes away to do a bid, I end up pregnant.  I thought I was so lucky.  We would finally have a chance to start a family, until the problems arose.  I knew his kidneys were having trouble, but I never knew it was, or would end up so bad.  Now here we are, my baby is 2 weeks old, and his prognosis is very dim.  He has already had surgery placing a dialysis catheter in his belly, and he still has to overcome the challenge of getting his lungs to up to par to endure the treatment.  I pray for my baby's progress and recovery.  I pray that God blesses him ad heals him.  I waited all my life for my little LJ and I need him.  I try to be here for him as much as possible,  even though I am helpless in his care.  I just pray the Lord gives him the miracle that he deserves.  He has already been through a lot, and despite what many have said, he is still fighting to stick around.  He and I have been fighting together.  Dear Lord, please place your hand on my son, and heal him of his ailments.  Please place angels on his shoulders to protect him daily.  He needs you lord, he is my miracle.  Amen.


June 8, 2011

10:45 am  O2: 90, power on oscillator: 5.  Of catheter being drained by 4th floor specialists.  Nurse said blood gas was not good.  Oscillator went to 5.2.  Pd catheter drained almost 300 cc of fluid from his belly.  He looks very thin.  O2 hasn't went up much.  They turned his head back towards the window.  That seems to be his best side.
Meeting today

Lj opened his eyes again tonight
O2 sats went down to about 85, hearing noise in tube.  Nurses said it was ok.  He is still breathing over the machine (don't like that).  They put the oscillator to 6😔.

June 9, 2011

Am nurse Judy turned his head to the left side this am @9.  His breathing tube was changed, now his breathing has improved.  O2 sats above 90s, they started weaning oscillator 5.2.  The nurse said the tube was clogged... This was why he was breathing over the machine because he was bit even getting the air they were trying to put in him.  I had asked last week if they should change the tube because it might be clogged up, but was ignored.


June 10, 2011

The air accumulated back in his chest today.  It had appeared to be drained out.  They drained fluid from his abdomen (pd cath).  His sats were very good, O2 weaned down to 36%.


June 11, 2011

The air came back again.. Draining it...pm nurse Stacy said they may need to replace chest tube, sometimes they have to have 2 she said.  Fluid was drained again from pd catheter.  LJ got a new et tube again.  He had another clog lodged in his throat.  Nurse Lynn said his sats went down to around 30s, oxygen went back up.  Settings on oscillator, mean pressure:19, power: 3.4.

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